Easterseals Partners with Rafi Nova in Sensory-Friendly Mask Development

Dr. Jennifer Johnston, Director, Behavioral Provider Network, Easterseals Southern California Autism Services discusses the partnership with Rafi Nova, a socially conscious lifestyle brand, to develop the Sensory-Friendly Mask, available now, that benefits children and adults with autism and other disabilities or anyone who finds wearing a conventional mask uncomfortable.  A portion of each purchase will be donated to Easterseals Southern California when you use code: ESSC

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New Wearable Migraine Treatment for Those Age 12 and Older

Dr. Jennifer McVige, director of the Concussion Center at the DENT Neurologic Institute in New York, and board-certified in pediatric neurology, adult and pediatric headache, and neuroimaging discusses the difference between a migraine and a bad headache, ways a teen might subvert a migraine by avoiding potential triggers, and new treatments like Theranica’s Nerivio®, a prescribed therapeutic wearable worn on the upper arm for the treatment of acute migraine in patients age 12 and older.

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Cancer Impacts the Whole Family: Reflections of Caregivers

We all know that a cancer diagnosis also affects family members to a great extent—but it’s difficult to fathom how much of your reality can change when this happens. We often see glimpses of how cancer can affect healthy and happy families, but it’s when you go through the experience yourself that you understand the full extent of the impact. 

Some of the most significant changes that cancer patients’ families report are:

  • Changing roles. After the diagnosis, there’s a shift in the overall dynamic. As treatment proceeds, the patient is unable to carry out tasks they did previously, which can be painful to accept for the patient and a challenge for their family as they do their best to compensate.
  • Expanded Responsibilities. From doctor appointments, caring for children, office work, and house chores, it’s an endless to-do list. 
  • Children. Having children in the equation comes with its own unique challenges. Kids can often sense that something’s wrong, so many parents choose to discuss the situation with their kids.

a husband comforting his wife after the diagnosis news

Strategies to Cope

Different people react to the situation differently. The family dynamic, presence of children, and support from friends and extended family members all play a part in how a family comes to terms with the new reality.

Having spent time with so many families who were battling cancer, here are some strategies that have helped many families cope:

  • Give yourself time. Learning that a loved one has cancer is a difficult process. There are several thoughts racing through your mind, all at once. Give yourself time to understand the situation and process the grief. 
  • Focus on the facts. It’s easy to fall down a rabbit-hole during your online research and let fear cloud your judgment. Remember that each person’s cancer is different, and their treatment will also be different. Focus on your situation and avoid getting overwhelmed by other people’s outcomes. 
  • Listen to your loved one. Take time to understand what’s going through the other person’s mind. Airing thoughts can help both you and your loved one release pent-up emotions. 
  • Accompany them to the doctor.  A qualified healthcare professional will be able to answer your questions best because they are aware of your specific situation. Knowing more about the treatment and potential outcomes can help ease nerves and help your family make more informed decisions. 
  • Ensure self-care.  You can’t take care of a sick loved one if you’re unwell yourself. Keep your health a priority by eating smart, getting proper sleep, and exercising. Incorporate daily practices to help relax your mind too, with different techniques like yoga, aromatherapy, or meditation. 

Battling cancer can feel like an uphill battle sometimes, but it’s easier with friends and family members supporting you during rough days. My CareCrew is one of the best apps for cancer patients with several tools to help you manage your schedule and coordinate support. Whether you need someone to walk your dog or just hang out for a while, this useful app for cancer patients can make things much easier.

Sign up to receive details about our mobile app release today or reach out to the My CareCrew team at hello@mycarecrew.co.

My CareCrew is not a licensed medical care provider. Please consult your medical team before following any suggestion mentioned in our blog or using a featured product or service to treat any medical condition.

Please note some of the products and services featured are from third-party and affiliate partners. My CareCrew receives compensation when you click on the links and purchase those products or services. Your purchase helps fund the free My CareCrew app for Cancer patients and caregivers!

 

One in Seven Black Men Will Be Diagnosed with Prostate Cancer in the U.S.

Dr. Arnold Bullock, MD, the Alan A. and Edith L. Wolff Distinguished Professor of Urology at Washington University School of Medicine, Siteman Cancer Center, and Barnes-Jewish Hospital discusses important information on what all men, particularly black men should know about prostate cancer, what they can do to better understand why this population of men is disproportionately affected, and about the prostate cancer screening process. He is joined by Dr. Lannis Hall, Director of Radiation Oncology, Siteman Cancer Center at Barnes-Jewish St. Peters Hospital who discusses prostate cancer risk factors, signs and symptoms, and advice on how men and their loved ones can advocate for their health to ensure earlier diagnosis and treatment of the disease.

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Survey Looks at Employee Mental Health in the Age of COVID-19

Returned guest, Ken Cahill, CEO of SilverCloud Health, a digital mental health platform, discusses a new employee mental health survey of 1,288 US-based individuals that examined employees’ mental health, wellbeing, and attitudes toward employer-sponsored mental health services and digitally delivered care.  Data shows that many are struggling due to increased stress related to the COVID-19 pandemic.

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Cancer Patient Experience with FDA Approved CAR T Therapy

Milton, a 68-year-old from Beulah, AL shares his experience of becoming 98 percent cancer free after his participation in a clinical trial for a recently FDA-approved CAR T cell therapy called BREYANZI® (lisocabtagene maraleucel) from Bristol-Myers Squibb. He was treated for a diffuse large B-cell lymphoma (DLBCL) – one of the most common types of non-Hodgkin’s lymphoma.

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Outcomes4Me – Cancer Patient and Survivor App

Maya Said shares her personal story and how she came to co-found the Outcomes4Me free app to help simplify the process and improve outcomes for breast cancer patients and survivors. It connects patients to a platform that leverages AI and machine learning to analyze and consolidate medical records – regardless of provider, network, or geography – to gain access to clinical trials, approved treatments, and tools for symptom management. They have recently announced a partnership with Vanderbilt-Ingram Cancer Center to pilot a first-of-a-kind integrated survivorship platform for breast and prostate cancer patients. She talks about the uphill battle cancer patients are facing due to COVID-19 including delayed screenings and essential appointments and why now, more than ever, there needs to be a single source of truth to ensure patients are staying on top of their treatment plans.

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Overcoming Female Incontinence

Award-winning physician, Dr. Jill Rabin, Professor of Obstetrics and Gynecology at the Zucker School of Medicine at Hofstra Northwell discusses the recent book that she co-wrote with Gail Stein and Danielle O’Shaughnessy, called “MIND OVER BLADDER: A Step-By-Step Guide To Achieving Continence” (Morgan James, Dec 2020).  This book seeks to educate women of all ages on the many causes of incontinence and the variety of treatment options available.

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Rare Genetic Diseases

Geneticist, Dr. Jennifer Ibrahim, MD, Head of North America Medical Affairs, Rare Disease at Sanofi Genzyme discusses rare genetic disease, why it’s so hard to diagnose, and the important role of genetic counselors for families who had a history of a rare genetic disease or learn of it. She talks about some new technologies and tests that are helping diagnose rare genetic diseases and what she anticipates will improve diagnosis and treatment moving forward.

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