Spinal Muscular Atrophy (SMA) Awareness – Patient Treated with Evrysdi

August is Spinal Muscular Atrophy (SMA) Awareness Month, and this year (2021) also marks the first anniversary of the FDA approval of Evrysdi (risdiplan) to treat SMA in adults and children two months and older. Here to talk about how this treatment has improved patient’s lives is Eric Arnold, a 35 year old lawyer in West Virginia who is grateful for the new treatments available to SMA patients and its transformative impact. He is joined by Dr. Karen Chen, CEO of the Spinal Muscular Atrophy Foundation who offers insights into this rare and debilitating disease and the current treatment landscape.

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Improving Health Communications About COVID-19

Dr. Andy Lazris, MD, and Dr. Erik Rifkin, PhD, co-founders of the Center for Interpreting Health Benefits and Risk discuss their new book “Understanding COVID-19 Risks: An Image is Worth More Than 1,000 Words”, (July 2021). They also talk about the Benefit-Risk Characterization Theatre (BRCT) which they developed and how they believe this can be an essential tool in clearing up a lot of confusion with COVID-19. They share the latest update on COVID and Delta and what the biggest concerns are right now.

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Sleep Researcher On New Insomnia Treatment

Margaret Moline, PhD, Executive Director, Neurology Business Group at Eisai discusses her work developing the first insomnia treatment to be approved by the FDA in the past five years.  She talks about the importance of sleep, sleep hygiene and the increased prevalence of insomnia due to the COVID-19 pandemic.

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Architecture For Senior Living

Vincent Myers, President and co-founding member of DIGroup Architecture, an award winning design firm in New Brunswick, New Jersey discusses why senior living has become a “health care product” according to “Senior Housing News” in their ‘Top Ten Trends for 2021’ and where architectural design fits into this new dynamic.

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Small Cell Lung Cancer (SCLC) Survivor

Montessa Lee, a small cell lung cancer (SCLC) survivor and advocate since 2006, discusses her SCLC journey, how she navigated her diagnosis at 28 years old, and how her story of survival – told through the “Nothing Small About It” program – can inspire others.

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Diabetes Research and its Relationship to Cancer

Dr. Debbie Thurmond, Ph.D., Director of the City of Hope’s Arthur Riggs Diabetes & Metabolism Research Institute discusses the institute’s focus on the intersection of diabetes and cancer, helping to answer the reasons why diabetes is significantly associated with an increase in cancer and how the growing number of highly effective cancer therapies may cause insulin-dependent diabetes.  She also talks about how philanthropic support will drive more discovery for the diabetic patient community and address some of the biggest drivers of inequity across healthcare.  

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Respiratory Syncytial Virus (RSV) Has Been Spreading in Unprecedented Levels This Summer

Dr. Michael Forbes, Pediatric & Adolescent Intensive Care Specialist and the Director of PICU Clinical Research & Outcomes Analysis at Akron Children’s Hospital​,​ discusses respiratory syncytial virus (RSV), a common, contagious virus that causes flu-like illness in infants and toddlers​,​ and the concern over the recent summer surge in cases. The CDC recently expressed particular concern that the pandemic has put babies and toddlers at risk for severe illness from RSV. He provides important details on what parents need to know about RSV, including which kids are at highest risk and how it can be prevented.

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Know the Difference Between COVID-Delta Variant and Cold-Allergy Symptoms

Allergist and immunologist Dr. Payel Gupta, professor at SUNY Downstate Medical Center and Mt. Sinai Medical Center, discusses differences between symptoms often seen with COVID-19 (including the latest Delta variant) compared to symptoms of a common cold and/or environmental allergies. Dr. Gupta outlines why it is critical to know the difference and at what point to consult a physician, in addition to ways to manage allergies as we head into another prime allergy season. Dr. Gupta is a paid spokesperson of ALK-Abello, Inc., a company that markets products to treat seasonal allergies including allergies to dust mites, grass and ragweed.

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