Patient with Acute Hepatic Porphyria (AHP)

Ariel talks about her journey of finally receiving a diagnosis of acute hepatic porphyria (AHP), a rare disease characterized by potentially life-threatening pain attacks.  She is now able to manage her disease. She also discusses her experience being treated with Alnylam Pharmaceutical‘s GIVLAARI™ (givosiran) a drug approved by the FDA in November 2019 for the treatment of AHP.

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Unmet needs for GI diseases like celiac

John Temperato, CEO of RDD Pharma and what will be 9 Meters Biotechnology, discusses GI diseases, current treatments, why there are still unmet needs for diseases like celiac and others, and what’s on the horizon.  Through the RDD/Innovate merger, 9 Meters will have larazotide, the first-ever drug candidate to enter Phase 3 registration trials for celiac disease. 

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FDA approves AUDENZ™ (Influenza A(H5N1)

Dr. Russell Basser, MD, Chief Scientist and Senior VP of Research and Development at Seqirus, discusses the FDA approval of Seqirus’s AUDENZ™ (Influenza A (H5N1) Monovalent Vaccine, Adjuvanted). This is the first-ever adjuvanted, cell-based pandemic influenza vaccine to protect against influenza A (H5N1) – a subtype of influenza that the U.S. Centers for Disease Control and Prevention says has strong pandemic potential.

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Insights into sleep

Dr. Janet Kennedy, a clinical psychologist, sleep specialist and author of “The Good Sleeper ” and Mary van Praag, President of the Intimates Group of Chico’s FAS, discuss tips for establishing a nighttime routine and share insights on rest from Soma’s national sleep study.

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Anti-thrombotic drug candidate

Dr. Neil Hayward, co-founder, President, and CEO at eXIthera Pharmaceuticals, Inc., discusses the need for a new anti-thrombotic drug and how eXIthera is addressing that need with their lead product candidate EP-7041.  The next step for EP-7041 is Phase 2 clinical trials on cardiac surgery patients.

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Preventing pressure injuries (bed sores)

Martin Burns, CEO of BBI (Bruin Biometrics), discusses preventing pressure injuries, the recently updated guidelines by the National Pressure Injury (formerly Ulcer) Advisory Panel, and the financial impact of pressure injuries and how the system can incorporate major change.  After crunching the numbers, analyzing the data and developing technology to create a solution, he believes that true prevention of pressure injuries can finally be made real.  

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Chronic lymphocytic leukemia (CLL)

Dr. Jeff Sharman of Willamette Valley Cancer Institute and Research Center and Nichole Fisher, RN, BSN, discuss recent research presented at the 2019 American Society of Hematology (ASH) Annual Meeting, the current treatment landscape for CLL, and the impact a diagnosis can have on a patient and their loved ones.

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Harris poll findings on chronic idiopathic constipation

Dr. William Chey, MD, a Professor of Gastroenterology & Nutrition Sciences, and Director of the GI Nutrition and Behavioral Wellness Program, University of Michigan Health System, discusses the findings from a survey called “Current Insights About Constipation” that was conducted by The Harris Poll on behalf of Shire (now Takeda) that shows the extent Chronic Idiopathic Constipation (CIC) has on daily life though few people talk about it. This year’s sub-analysis of the survey was done looking specifically at how women are impacted by CIC.

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