American Porphyria Foundation [transcript][audio]

Guest: Desiree (Dee) Lyon  

Presenter: Neal Howard

Guest Bio: Dee is the Executive Director of the American Porphyria Foundation as well as an Acute Intermittent Porphyria patient. She suffered her first attack when she was 17 years old. In 1982, she founded the American Porphyria Foundation to educate doctors and the public about porphyria, raise funds for research, and advocate for a better policy and patient care.   

Segment overview: Desiree Lyon, Executive Director of the American Porphyria Foundation, discusses the foundation, patient advocacy, and her own experience with acute hepatic porphyria.

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