Mother of Child with Duchenne Muscular Dystrophy

Laura McLinn shares her journey with her son, Jordan, who was diagnosed with a progressive rare disease called Duchenne muscular dystrophy. She wants to share her family’s story in hopes of helping others facing Duchenne muscular dystrophy.

Laura McLinn is a mother of three children, a wife, a former mathematics teacher, business owner, rare disease advocate, and founding president of the Best Day Ever Foundation. Laura started her career as a public-school math teacher. After twelve years of teaching, she got married, started her family, and also started her own business, Indy Learning Center, providing math tutoring, Spanish classes, and educational childcare to young children. When her own son, Jordan, was diagnosed with Duchenne, a rare and fatal form of muscular dystrophy, Laura started advocating for him and others with rare diseases. Laura founded the Best Day Ever Foundation to help support other families who have children with life-threatening illnesses. She is passionate about helping families. She provides workshops to educate families on a wide range of topics including individualized education programs, homeschooling, navigating clinical trials, and more. Laura is currently homeschooling Jordan, and she is also his full-time caregiver.