Susan, a woman living with an NTRK gene fusion, a rare genomic driver that drove her thyroid cancer shares her unique cancer journey and how she benefited from genomic testing. As an advisor on the TargetCancer Foundation’s TRACK (Target Rare Cancer Knowledge) Patient and Caregiver Advisory Council she was directly involved in the development of the TRACK Study and has first-hand understanding of the importance of early testing and broader access for patients like her.
Susan was first diagnosed with thyroid cancer in 2004. After many unsuccessful rounds of treatments and radiation therapy, she quickly embraced the opportunity to participate in, and later advise, an NTRK gene fusion clinical trial. Susan has played an integral role in the NTRK cancer community by creating a successful Facebook group for NTRK patients and is co-founder of the NTRKers.org. Both these outlets allow patients and caregivers to connect with, advocate for, and inspire one another throughout their treatment journeys.